Questions
for Discussion
1. Anne-Marie Erickson collected things Dick said or wrote during his dementia and used them for the book and chapter titles. How did Dick’s sayings affect you? Did you get a better sense of who Dick was, or the progression of his dementia, or how much he loved Annie? Do you think this was an effective way to organize her experiences into this memoir?
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2. Erickson connected their experience to myths, word origins, and fairy tales. How did this impact your understanding of their experiences? Did the integration of this kind of information into Erickson's writing move their individual experiences into the broader human experience?
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3. Erickson describes how they built their home in the woods of northern Minnesota together, and what their daily life and chores in that space were like. Do you think the ways they built their home and life together contributed to Annie’s steadfastness and devotion to Dick?
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4. Erickson is forthright about the anger she felt amidst this experience. How did considering this aspect of Annie’s experience affect you?
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5. Erickson says that Dick’s “essential self” persisted even as his dementia progressed. Had you thought of this concept before or have you had any experience with this while witnessing the experience of someone you’ve loved?
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6. Is there a turning point in Erickson's memoir? If so, where would you place it and why?
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7. Were you surprised by any revelations or discoveries in the book? Did you learn anything new or unexpected?
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8. Why do you think Erickson wanted to tell this story? What do you think is the main thing she wanted you to come away with from reading her memoir?
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9. Having read Erickson’s portrayal of her marriage and life with Dick, especially during the time of his dementia, do you think it will affect how you would approach a similar experience?
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10. Did Erickson’s story cause you to reflect on your own life and experiences?
Additional Resources
General Information about Alzheimer's and Other Dementias
​​Alzheimer's Association: www.alz.org
Seeks to end Alzheimer's and all other dementia by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Provides
links to research and resources, as well as to local chapters.
​
Alzheimer's and Dementia Weekly: http://www.alzheimersweekly.com
Regularly updated, an excellent resource with numerous videos and articles on Alzheimer's and dementia.
​
Alzheimer’s Disease Education and Referral (ADEAR) Center:
https://www.nia.nih.gov/about/alzheimers-and-dementia/about-adear-center
A service of the National Institute on Aging, the ADEAR Center offers information and publications on diagnosis, treatment, patient care, caregiver needs, long-term care, and research related to Alzheimer’s disease.
​
Alzheimer's Foundation of America: www.alzfdn.org
Provides support, services, and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias. Offers caregiving resources, as well as
memory screening: https://alzfdn.org/about-afas-national-memory-screening-program/
​
Alzheimer's Research Forum: www.alzforum.org
A news and information site developed for scientists that reports the latest scientific findings in Alzheimer's research. Designed for scientists, rather than the general public.
​
Association for Frontotemporal Degeneration (FTD): www.theaftd.org
Offers information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers.
​
Fisher Center for Alzheimer’s Research: www.alzinfo.org/understand-alzheimers
Provides answers to typical questions asked by families about the disease and its management.
​
Lewy Body Dementia Association: www.lbda.org
Raises awareness of Lewy body dementias (LBD), promotes scientific advances, and supports people with LBD, their families, and caregivers. LBD is complex and can present a range of physical, cognitive, and behavioral symptoms.
​
Making Sense of Alzheimer's: https://makingsenseofalzheimers.org
A beautiful site that includes sections on the art and the science of the mind, as well as individuals' stories, in "The One I Know."
Mayo Clinic Dementia Program Guide:
https://mcforms.mayo.edu/mc7900-mc7999/mc7963-01.pdf
An overview of Mayo Clinic's programs, including a guide to memory loss for persons diagnosed with dementia. Provides information on the Habit Healthy Action program for those with Mild Cognitive Impairment and the Mindfulness program for care partners. Virtual offerings include a support group for all dementia caregivers and Lewy Body information and support.
​
National Institute on Aging:
https://www.nia.nih.gov/health/what-happens-brain-alzheimers-disease
A layperson's guide to the neuroscience of Alzheimer's, including a link to Brain Health resources.
​
People Helping People with Alzheimer’s: Alzheimers.gov
Resources from the Administration for Community Living on Alzheimer’s disease and other forms of dementia.
Specifically for Care Partners
AlzConnected: www.alzconnected.org
Free online community for everyone affected by Alzheimer’s or other dementias with message boards for persons with dementia, caregivers, family, and friends.
Caregiver Action Network: http://www.caregiveraction.org/
This website is for caregivers in general but has a section for dementia caregivers, including informative videos. General resources for caregivers, including a Peer Forum, a Story Sharing platform, and the Family Caregiver Tool Box.
​
Family Caregiver Alliance: www.caregiver.org
Addresses the needs of families and friends providing long-term care at home. Provides caregiver resources, such as "Caring for Another" and "Caring for Yourself." Also has links to available services by state.
Mayo Clinic Dementia Education and Wellness Programs:
Information on programs and workshops offered by the Mayo Clinic that are designed for family care partners of people with dementia, including mindfulness training. Additional offerings focus specifically on Lewy Body dementia.
​
Medline Plus - Alzheimer's Caregivers: www.nlm.nih.gov/medlineplus/alzheimerscaregivers.html
A service of the National Library of Medicine and National Institute of Health (NIH). Research on and information for Alzheimer’s caregivers.
​
National Alliance for Caregiving: https://www.caregiving.org
A site for caregivers in general. Has a link to a Brain Health Conversation Guide for family caregivers to assist them in starting conversations with a loved one about memory changes.
Blogs
ALZ Blog: https://www.alz.org/blog
Created by the Alzheimer's Assn., this blog allows caregivers and those with Alzheimer’s to share their stories. It also provides updates on research and on dementia-related articles, books, and films.
The Caregivers Voice: https://thecaregiversvoice.com/blog/
Founded by Brenda Avadian, this informative blog serves family caregivers and professionals who work with adults with cognitive impairment or dementia.
Suddenly Mad: https://suddenlymad.com/
Beautiful blog with writing and artwork by a woman who has early onset dementia. Offers insights for persons in the early stages of dementia as well for family and friends living with and witnessing a loved one's decline.
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